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Zara suffers from lipodystrophy, a genetic disorder that causes the supporting fatty tissue under the skin to crumble while the skin continues to grow. Zaras condition, Congenital Generalized Lipodistrophy, is extremely rare, only about 2,000 people in the entire world have been diagnosed.
It is also associated with insulin resistance, diabetes, a high triglyceride level and fatty liver. The loss of subcutaneous fatty tissues happens at different rates Zaras entire family suffers from the disease but her symptoms are far more serious than her older siblings.
Zara looked like a grown up by the time she was ten. Now she struggles to convince bus drivers that she deserves the youth rate, not the senior discount. "
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